So, thanks for reading meredith's blog. I will catch you up on what has been happening because I have not been good about keeping this updated.
We are currently in New York and staying with Steve's parents. Meredith will have chemotherapy for 43 weeks and 28 days of radiation. This radiation is spread through 6 weeks because they only do it on week days. We are in NY to go to a radiation oncologist that specializes in head tumors in kids. We really had a hard time deciding if we should come here but once we made the decision we knew we made the right decision. She will continue to get her chemo while we are here.
Today is the first official day of radiation. Only 27 more sessions to go. We might try to do it without anesthesia. Last week they created a mask for her so the radiation is very directed. I just asked her about it but she is freaked out about the mask, so she like likely sleep through the radiation. Usually, it will only be 5 minutes or so. If she can do it awake, she can eat, it will take a lot less time because there won't be any recovery time and she will likely be less cranky. The propophyl tends to make her a little cranky. I would be too if I were her.
They test her blood two times a week during radiation. Today her hemoglobin was too low so she is getting her first blood transfusion. She is snuggled into a bed and watching PBS.
We are all adjusting well to NY. The first couple of days were hard for zack and the next couple were hard for Meredith but overall, I think they are doing really well. There are a ton of silver linings and we are focussing on those. Zack and I remind ourselves by saying we are making lemonade (out of lemons). Our best lemonade has been hanging out with our awesome cousins Ben and Jordana and awesome grandparents, aunts, uncles and cousin Adam. We are so very lucky to be here with them.
We miss steve a ton. We are going to Skype tonight, so that should be a lot of fun.
Thank you for all the support. There a no words to describe how much easier it is to know we have people praying, wishing, thinking about her. more soon.
